2 of our 3 young children have kidney disorders. When we first entered into this realm, I was surprised that I was not able to find much relevant information on the internet. It is my hope that others will be able to take something from this blog, be it support, education, or understanding of what the procedures/surgeries are really like.
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Sunday, March 18, 2012
June 1, 2011: Surgery Day for Celia
Celia before being prepped for surgery.
Prepped and ready to go...she's wondering what is going on!
Out of surgery and up on Level 6-Pediatrics in her private room. Dora joined her from the Gift Shop, and her nurses were nice enough to dress Dora up like Celia!
We feel so very fortunate and blessed to have our daughter be under the care of Dr. Churphena Reid. The surgery went wonderfully. It was an anxiety-filled morning, simply taking into consideration the fact that we were handing our 2 year-old daughter over for surgery. What assuaged our fears was knowing that she had a world-class surgeon and medical team working on her and with us to provide the best care possible. Dr. Reid met with us in a consultation room immediately after surgery and explained the positive outcome of the surgery to us. She sat down with us and answered all of our questions. It impressed me that she did not rush us and genuinely seemed empathetic to our feelings.
After surgery Celia was taken up to her room, which she would be in for the next few days. I hadn't been in the patient rooms in the new Children's Hospital before, and WOW! They rival any nice hotel out there. The rooms are all private and equipt with flat screen televisions, private telephones with a direct line to room service, interactive features on the tv (such as on-demand television shows and movies, information for parents on relevant medical information, etc). There are pull-out sofa beds for parents to spend the night on, as well.
What most impressed me was the level of security on the Pediatrics floor. No one goes in without a photo-ID badge, which expires after a set amount of time. To visit a patient, you first must be put on a list by the patient (or the patient's parents). Once you are on the floor, if a child gets across a certain point too close to the main doors, alarms wail and the doors automatically lock. It is very high-tech and safe.
Celia was understandably in a lot of pain after surgery. Her incision looked exactly like a c-section incision. Low and in-between her hip bones. Almost a year later there is only a whisper of what it originally looked like.
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